After it continued for two more days, I decided to take him to the doctor. His regular pediatrician wasn't in so we saw the pediatrician that is also an infectious diseases specialist. I encouraged him to give Byron a full blood work up which Byron hasn't had for several years.
They took at least 10 vials of blood (Byron was a trooper!) They tested for a large spectrum of possible issues including Chrons, irritable bowl, liver and kidney function and several tests for Lyme. So far all have come back negative except for Lyme. It turns out Byron has full blown Lyme disease - and has for at least 6 months. For those who know this is the result:
IgG and IgM antibodies by Western blot
- Positive IgG and negative IgM – Lyme disease confirmed
Now Byron will be on oral Amoxicillin for one month. I hope this is really the right med for this. We'll see.
But the thing that makes me go hmmmm..... is that neurological symptoms, including seizures, can be a bi-product of Lyme. Of course Byron is already predisposed to seizures due to the hemiplegia - but wouldn't it be interesting if when we get the Lyme under control, the seizures go away.
I'm not even sure how we would find that out, another EEG test with him off his seizure meds I guess? Anyway - poor poor Byron. The sweet guy can't get a break. But maybe, just maybe, there is a hidden blessing in this new development. I'm guessing I may be the only person on the planet who sees Lyme as a possible blessing!