Byron's Wonderful World: August 2014

Sunday, August 17, 2014

Harbor Lights Cruise

Byron loves New York City, and so do we! Tonight we took the Harbor Lights cruise on the circle line with Bob's Sister and Brother-in-law Karen and Chris. The weather was beautiful and the visuals were stunning!

Blog Overview

Byron has Cerebral Palsy (Left Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.