Day Three - Five Day EEG

Stay Longer?
Byron has done very well in his Neuro Psych exam.  YAY!  It's a lot of coloring and building and answering questions, all things that are not his favorites.  But with a little treat bribery (milkshake anyone?) he's putting up with it.  He has another 90 minutes this afternoon and then he will be done with that test.

The other news is that they might be able to work him in for the sedated MRI on Monday.  This is great news and means we won't have to come back for this particular test.  So, we will stay through the weekend.

And, starting tonight they want to force a seizure.  What this means is they will wean him off his medicine and sleep deprive him.  For Byron, sleep deprivation is a party!  He can stay up until midnight or one every night until he has a seizure.  This is important because they want to know exactly what area of the brain the seizures are coming from.  This will help the doctors to decide the next course of action.

Once this is all finalized, Bob will come and take over for me on Friday.

Special Tea
Once a month -  mothers, fathers and families that have had children in the hospital here, and even children who have been here at one time or another, serve a fancy sit down tea.  It is full of delicious home made delicacies and tea/coffee.  Today was the day!  Byron couldn't leave the room so I sat and had Coffee, Tiramisu and Red Velvet Cake. I brought Byron some of the home made chocolate chip cookies.    He was very happy.

More Santa Photos

Santa's elves sent more pictures of Byron and Santa from yesterday's Skype call.