Surprisingly, the new EEG Byron had overnight on Monday night was excellent. The sub-clinical spiking that predicated the need for the surgery is nearly gone. It went from him spiking every ten seconds during the day down to 1% and down from 85% to 11% at night. So the small dose of Valium he is on, 5mg before bed, is really working.
The second test was to determine if he has a field cut i.e. because of his stroke on the right side, the left side of each eye is vey likely not seeing. It turns out, rather miraculously, he does not have any field cut. The surgery he was about to have would absolutely give him this field cut. So the surgeons are now hesitant to do this type of radical hemispherectomy surgery.
The recommendation is now to wait and see, retest in June and go from there. We are very happy with this outcome. He will still need an aid in school because of the actual seizures which have not abated, but the dangerous stuff, the subclinical spiking, seems to be responding well to the new medication.
Prayers and blessings really really do work. Never doubt it.
My heart sings with yours. Love, prayers and blessings for Byron and your family as you support him. Revel in your good fortune. Judy Lynn
ReplyDeleteThat is wonderful news Denise! Sharani
ReplyDeleteSo happy to hear the wonderful news Denise!!!
ReplyDeleteKunti
Wow, miraculous news Denise. I have been thinking of you all and sending you oceans of love. Keep smiling Byron, you are one amazing guy! Love Rashmi
ReplyDeleteYea, Byron! So happy to hear the news! Katya Ellen
ReplyDeleteSo very happy to hear this. LOVE
ReplyDeleteWhat a relief. May the good results continue and become the new norm.
ReplyDeleteWhat a relief you all must be experiencing.
ReplyDeleteSending Byron lots of Love, Lots of Joy and Lots of Peace ๐๐ป
You are remarkable Denise ๐
Wonderful... blessings to you all
ReplyDeleteCongratulations! We will keep on holding him in the light.
ReplyDeleteLove always, -Thomas