Today Bob took Byron to NYC to get the 60+ staples removed and to meet with Byron's epilepsy specialist. The removal went well with no pain (PHEW) and we have a slow weaning plan to get Byron off of the seizure medicine. I think the weaning schedule is too slow but I always do. He is on such a huge dose that I really want him to be finished. And, if the surgery was a success and there are no more seizures, we will know it once the medicines are removed.
The only minor hiccup is that he is still having fevers. The surgeon did not seem too worried about it. He said that they should level off soon. Hopefully the antibiotics will help.
Byrons attitude remains excellent. He has never complained except during the first few days. He takes this challenge in stride like most things. Truly a remarkable human being. Even being his mom, I'm not shy saying that :)
Sent the following letter off to the school today from the doctor.
Congratulations on stitches removal! What a milestone! Best of luck with the medication weaning... here's hoping!
ReplyDeleteHugs and hugs,
Thomas & fam