It's a right passage to see your first live show. Today was it for Byron. He saw Elmo LIVE with is friend Eli. Byron did pretty well although the lights and loud sounds were too much for him so we sat in the lobby for part of it. The best was Byron's reaction when Elmo first came on stage. Tears poured down his face out of sheer excitement and love for his buddy Elmo. I could tell because he was beaming and crying at the same time - a true groupie!
Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.