Showing posts from 2014
On November 24,2014 Byron went to his first Radio City Music Hall Show - the Winter spectacular. Denise was sick so Shami went with Byron and Dad.

Byron liked the A train.  Here he is with Shami. The show had lots of fun charactors As always the march of the wooden soldiers. After the show a quick stop at the FDNY fire department store for a picture After the show we went to Rockefeller Center and watched the skaters. Byron likes the street musicians.  He always gives them a dollar.

Byron Sings Let it Go

It amazes me how much children love this song. Most adults I know really don't like it at all!  Byron loves it, has memorized it and has pretty good pitch!  Check it out....

First Day of Second Grade!


Harbor Lights Cruise

Byron loves New York City, and so do we!  Tonight we took the Harbor Lights cruise on the circle line with Bob's Sister and Brother-in-law Karen and Chris.  The weather was beautiful and the visuals were stunning!

Byron's Teeny Water Slide



For two years now I have wondered if Byron would ever gain the confidence to swim unaided in a pool.  This year, on a trip to Captiva Island, he met a 9 year old boy named Matthew who was an excellent swimmer.  Matthew was very patient with Byron's inability to swim and played with him in the shallow waters happily.  One day Matthew was unavailable to play and Byron surprised us all by not only jumping into the shallow end unaided, but the deep end as well.  He even swam across the pool! Byron was so proud to show Matthew what he had learned later that day.  I am certain that the SDR surgery also made it possible for Byron to more freely move his leg.  In the video you can see some nice movement there. Go Byron!  (and thank you Matthew!!)

First good sunset!


Byron's Crazy Captiva Go Pro Video - Wait for the Dad Splash!

Fun in the sun!


Captiva Island Bench 2009 and 2014


Before and After - Stairs

I have very few before and after videos. Here is a new video of Byron walking down stairs - no braces.  Now look at the video below.  That was with full bracing shortly after the surgery - his toe was pointed WAYYYY in.  Great to see good progress!

Byron First Dorsal Rhizotomy Follow Up - Columbia

Today Byron had his 6 months follow up to the SDR surgery.  It was the first time we have seen his surgery and recovery team since November 2013.  The appointment was at Columbia Presbyterian at the Spasticity Clinic.

The comparison of the before with the after testing was very promising.  His spasticity numbers had decreased which was very good.  What was most surprising was their reaction to Byron himself.  One therapist said "He seems like a totally different kid!"

Byron was cooperative, friendly and relaxed.  This was in stark contrast to several of his earlier visits with this team.  Each time he visits there he is asked to walk, run, jump and they play a lot with his legs and arms.  This time he really seemed to enjoy it.

The BEST news is that he no longer has to wear a leg brace.  They could see no difference between the SMOs, the AFO and nothing at all.  Needless to say this is awesome!

Byron is walking better but he still has a long way to go.  His ankle is still r…

Byron is so Tall!!

Byron is 51 inches!