Blog Overview

Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.

Sunday, June 8, 2014


For two years now I have wondered if Byron would ever gain the confidence to swim unaided in a pool.  This year, on a trip to Captiva Island, he met a 9 year old boy named Matthew who was an excellent swimmer.  Matthew was very patient with Byron's inability to swim and played with him in the shallow waters happily.  One day Matthew was unavailable to play and Byron surprised us all by not only jumping into the shallow end unaided, but the deep end as well.  He even swam across the pool! Byron was so proud to show Matthew what he had learned later that day.  I am certain that the SDR surgery also made it possible for Byron to more freely move his leg.  In the video you can see some nice movement there. Go Byron!  (and thank you Matthew!!)

Thursday, June 5, 2014