Blog Overview

Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.

Wednesday, February 1, 2017

Surgery Postponed!

We have very good news -  at least for now.   Byron had two more critical tests to complete on Monday and Tuesday even though the surgery was already scheduled for Feb 8.  

Surprisingly, the new EEG Byron had overnight on Monday night was excellent. The sub-clinical spiking that predicated the need for the surgery is nearly gone.  It went from him spiking every ten seconds during the day down to 1% and down from 85% to 11% at night.    So the small dose of Valium he is on, 5mg before bed, is really working.  

The second test was to determine if he has a field cut i.e. because of his stroke on the right side, the left side of each eye is vey likely not seeing.  It turns out, rather miraculously, he does not have any field cut.  The surgery he was about to have would absolutely give him this field cut.  So the surgeons are now hesitant to do this type of radical hemispherectomy surgery.

The recommendation is now to wait and see, retest in June and go from there.  We are very happy with this outcome.  He will still need an aid in school because of the actual seizures which have not abated, but the dangerous stuff, the subclinical spiking, seems to be responding well to the new medication.  

Prayers and blessings really really do work.  Never doubt it.