Byron had a great Easter. At the end of a full day we took a long walk. We walked from our house down a steep incline with steps, for 1/2 mile. At the end of the trail is a great playground. We played there for about 30 minutes and then climbed all the way back up to our house. Byron walked every step of the way by himself, except for the steepest part on our return trip. He just turned three on March 28th and we are so proud of him for completing this favorite walk, way earlier than we ever thought he would. Go Byron! Here's a slide show - (hint - just below the youtube logo, make sure 720p is selected (not 360) otherwise the quality is terrible. You can also click on the the little icon that looks like four arrows facing outwards and watch in full screen - enjoy!)
Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.