Wednesday, August 23, 2017

Managing the Unimaginable

Byron's doctor just left.  According to the EEG Byron had 33 seizures last night.  (Long pause)

So now we try and add Onfi to his seizure medicines today and we could see a good result tonight.   Byron is already begging to leave so this will be hard for him.  It's possible we may be here a day or two longer.

And we are now looking at the Functional Hemispherectomy surgery again.  I'm not sure if the Onfi works if they go forward with that full on or not, I guess we have to wait and see.

The doctor has also ordered a test that we have to have at Overlook Hospital in New Jersey which will tell us where his visual field cut is.  This is important because the surgery will give him a field cut if he does not already have one.  This means that the left side of his vision in both eyes will be gone after the surgery.  

Poor Poor B.  Sad for him today.

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