As we approach the two year anniversary of Byron's hemispherectomy, we were never more certain of it's success than last night at Byron's 7th grade open house.
November 3 marks the two year anniversary of the surgery and of Byron being seizure free. November 3, 2017 was the date when they disconnected the right hemisphere of his brain and changed him forever.
Just before the surgery we received a call from his 5th grade teacher. She told us he was unteachable and could not learn. Two years later this same teacher is his mentor in the LEO club where Byron does volunteer work for his school's community service program. Last weekend Byron was a waiter at a benefit for a child with cancer.
Yes Byron is seizure free, but he is also more verbal, more social, makes great eye contact and can hold a back and forth conversation with more than one exchange. And what is most remarkable is that he can focus. Every teacher since kindergarden has talked about his lack of focu…
Today we went to Dr. Hyman's office at Columbia to have the cast removed. Byron was very excited.
This is a video of the cast removal - I guess it was pretty ticklish.
This is Byron's foot after the cast was removed with the surgical scars. A bit more gory then I imagined. Byron didn't mind though. He thought it was cool.
This is a video of Byron walking immediately after the cast removal. He looks pretty good!
Byron now has to wear a removable boot for two weeks until his foot brace, known as an AFO, is ready. The boot looks like this:
So now a boy's summer can properly begin! Swimming lessons on Saturdays and lots more pool time.
Also, Byron will start physical therapy three times per week at the Center for Discovery to regain strength and to ensure that his newly released heel stays down and his toe stays forward. The journey continues!
Today Byron was the demonstration child for a large gathering of Physical Therapy professionals/students at the Center for Discovery in Hurleyville. He delighted the students by singing songs for them while he was being treated.
Byron sang an excerpt from the opening of Sponge Bob the Musical at the end of the session.
And finally, one of the therapists attending today, worked with Byron in Ithaca when Byron was four. She let us know about the death of a very special person:
RIP Kathy Schlough - 1952 - 2018
Kathy was Byron's first therapist after his diagnosis. She had been the head of the Physical Therapy PhD program at Ithaca College and had just left there because she missed working with children directly. She was an invaluable guide, friend and mentor during the early days of Byron's diagnosis. She was an amazing artist and we have two of her paintings in our home. We were stunned to learned that she died from cancer in May of this year at 66. Dear Kathy, you will b…