Byron's Wonderful World: Waiting Waiting Waiting

Saturday, February 21, 2015

Waiting Waiting Waiting

We are in the area of Neurology called the "Theatre Neighborhood" . This is Byron's room tag.

The pediatric floors are divided into neighborhoods. I'm glad we got this one given my prediclictions!

All we are doing now is waiting for the neurologist to set us on our next round of tests, updates, results, consults etc. Absolutely nothing has happened this morning except monitoring. Byron's appetite is good, he is on Tamilflu, his fever is down and GOD BLESS the iPad!

I have been told the Neurologist is on the floor so fingers crossed!

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Blog Overview

Byron has Cerebral Palsy (Left Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.