We do not have complete seizure control and a definitive plan to move forward but there is not much more we can do here. So we follow up in two weeks with his neurologist, hope the neurosurgery team has ideas, and we wait. But Byron seems alert and not too overly compromised by the very strong medications so that’s great. We thought he might be pretty out if it. But other than being a bit sleepy he’s alert and steady on his feet.
He’s very very happy to be getting home to his video games, his dog Max and the rest of his summer. So are we. But we leave with a nervous undercurrent. I want those five years seizure free to continue for the rest of his life. I want another permanent solution. May it come and come quickly. A lifetime of seizure meds is not our best option. Onwards!
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