Wednesday, June 22, 2022

Medication One Not Really Working

The first medication they put him on was Keppra and at least this seemed to stop or slow the clinical manifestation of the seizure, meaning the eyes locked to the left.  So that eye movement is not happening now which is good.  But the subclinical, the electrical discharges in the brain, have not abated.  This is very worrying.  The doctor called them "cyclical seizures", originating from the frontal lobe on the disconnected side. 

So they are going to add another medication Vimpat.  He will be on Kepra 1000mg twice per day and Vimpat 100 mg.  The surgical team is going to meet and consult, but not until tomorrow.  We will have some idea of what the surgeons say about next steps then.  

Bob is tired but he's resigned to the fact that they will spend at least one more night in the hospital.  The medicines are affecting Byron now, he's very sleepy and kind of out of it.  This is why I REALLY dislike seizure medicines. There is no way around the side effects.  More soon...

2 comments:

  1. Thank you so much for keeping us posted on sweet, smart, handsome Byron ❤️Please give him my love! Is there anything I can do? Send him something, anything?? Love, Shreya Marks

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  2. Thank you for these updates Denise! I wish the circumstances didn't call for them, but what a blessing to have such an amazing team of specialists to guide you all through this.... Sending love, Cynthia

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