We have a way forward! Just had an excellent meeting with Dr. Feldstein (I LOVE FaceTime) the wonderful neurosurgeon who did Byron's initial surgery. There is so much hope now! He doesn't know yet why or from where the seizures are happening but he is determined to make them stop. And soon! There are several pathways forward:
1) The DTI specific MRI that we had yesterday might show a missed connection. This missed connection can be fixed by a laser ablation procedure. Not even an overnight in the hospital!
2) The DTI doesn't show anything so they proceed to an SEEG. This is tiny implants through holes in the cranium, minimally invasive, and these readings will tell the surgeon exactly where the seizures are coming from. Once they know (usually takes 1 - 4 days in the hospital) on the same hospital stay, they can go in and remove this seizing tissue. Should be minor pain and not a long hospital stay.
The best news is that the surgeon said "I'm not going anywhere this summer so I want to get this done!"
Hallelujah! All the prayers and blessings from all over the world and from so many dear friends and family have supported us while we get the answers that we needed. Grace abounds.
Thank you, Denise!!! Byron is such a trooper!!!!
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