All of our meetings with Byron's doctors were pushed up to early this week (this morning via Telehealth and yesterday in NYC) so his case could be presented in an epilepsy conference this Friday. In this conference the doctors will come up with the best course of action. Byrons' surgeon will call us with the results of the conference Friday afternoon. They are still keeping next Wednesday, July 27 as a possible surgery date, whatever type of surgery that may be.
Byron LOVED his week with Ryan and Regina and niece Charlotte. He especially loved The Weekend concert in East Rutherford. Byron went with a young man he met in Coding Camp.
Byron helping Charlotte down the stairs.
How wonderful that you get a whole conference of doctors working together to figure out how best to help Byron! Your Thomas cousins support and care for you, Byron! You are in my prayers and in my heart, every day. We all love you so much.
ReplyDeleteSO proud to know you, every day,
Your cousin Thomas