Great news! We heard from Dr. Feldstein that the surgery is on for Wednesday. They are not going to do the SEEG. They are going directly in and will monitor the brain once inside. The plan is to remove the right frontal lobe (already disconnected so this will have no impact on Byron's movement etc.). This is the part of the brain that they have determined is still seizing and is somehow reaching the left side.
Bryon and Bob will arrive early Wednesday morning for surgery at 8:00 am. The surgery should be complete by noonish on Wednesday. Then a hospital stay for 3-4 days and then home.
Bob and I just reviewed the videos of the first surgery from the hemispherectomy from November 2017. The surgery will require the same incision and craniotomy so the pain and swelling will likely be the same as the first surgery. This will mean a bit of careful wound and pain management. The last time he went directly to long term rehab at Blythesdale so the nurses there took care of all of that. It will be interesting to see how this unfolds with all that happening at home. I truly hope this is the LAST time this poor child has to go through this.
Thank you for keeping us in the loop Denise. I'm glad the surgeon and his team of experts have a clear plan and are implementing it so quickly. May the surgery go smoothly and be guided by their expertise and the Divine. May Byron, Bob, you and the rest of your family feel supported, loved and uplifted through this process. May Byron continue to move towards optimal well-being!!! Big love, Cynthia
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