What a bear our health care system is. Byron went to NYU Langone Emergency because the doctor that he has been seeing since he was five, transferred there to be the head of Pediatric Epilepsy Surgery. When Byron and Bob checked in yesterday and they showed Byron's insurance, nobody flagged anything. Well we found out today that the hospital and the doctors do not take Byron's insurance. UGGGG! After way too many phone calls (even the hospital couldn't help) I finally got the answer from his current insurance that because it was an emergency visit, they will pay for it. Even for the inpatient care. Phew! Now I just have to see if they will pay for the doctors. These hospitals bill the doctors separately. More phone calls. I even had to make a trip to the county social services office to see if they could help solve this. When you have a sick child you shouldn't have to deal with all this! Ok enough complaining.
The seizures are still not controlled. He has had multiple seizures today. They are hoping they can get them under control tonight. Byron is in an MRI now. The bummer is they have to take off all the EEG leads to do the MRI and then put them back on. It's lots of uncomfortable pulling, chemicals to remove and then more glue.
On a lighter note, someone brought this plant to his room today and said to give it to his mother. Good! I need it :). Bob is there so he accepted the plant on my behalf.
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