Just arrived at the hospital. I'm seeing Byron for this first time since all this began. Right now he is going in and out of consciousness. It seems the new seizure medicine, Vimpat, is making him very groggy. When he speaks it is mostly in gibberish or half thoughts. I'll find out more about this med when the doctor comes in.
NYU Langone is a new hospital for Byron. It’s hard not to reflect on all the days and weeks at Morgan Stanley Childrens and compare. We are very fond of that hospital. This is nice too. Not as many restaurants but amazing views. That’s
the Empire State Building right outside the window. The sunsets are going to be awesome!
Following your hospital journey and wanted to let you know about an amazing podcast - Wild Card with Rachel Martin. Free on NPR and Apple Podcasts. Truly profound interviews,... just listened to David Lynch talk about his meditation experiences and I instantly thought of you. His thoughts on meditation are just AMAZING; highly recommend to help get through some hospital time..... Much love to you and gentle healing hugs, A.
ReplyDeleteThank you for sharing that gorgeous view for us. Praying for insurance coverage of the right med combo! Seems like medical billing requires preauthorization for every little thing. Even the surgical sponges get a separate line item on the bill. Health care for all!
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