Byron is off to his high resolution MRI. He hasn't had any food or water all day so he is looking forward to a smoothy or a burger when he gets back. He seems much better today. Although this morning he said heartbreakingly, "Mom - I can't live like this."
It seems like the medicine that was so toxic for him last night is wearing off. He is now on 3,000 mg of Keppra and 400 mg of Vimpat per day. These are high doses but they do seem to be making some improvement. The idea of a new weekend medicine and the intubation is now off the table. These other meds seem to be starting to work. They are not getting rid of the subclinical seizures, the seizures that have no overt outward effect, but the outward seizures are less.
Dr. Heldago has booked a surgery room for next Friday. Byron's case will be presented at their Neuro conference on Wednesday. If the surgery needs to happen sooner she can do it, and even though we don't know yet what kind of surgery he will have, she wanted to be ready. I really like her!
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