We hear that a lot from doctors and others. And they said it again today. Byron's primary epilepsy doctor, Dr. Akman happened to be on the floor today, and at the same time that she was visiting, NYU's top headache specialist also happened to be on the floor. So NYU's head of headaches :) and the chief of epilepsy were able to interview Byron in depth and then confer together. to create a plan. Byron IS lucky!
The plan is this - tonight they will hook Byron up to the EEG leads to make sure he is not having seizures. At the same time, the headache specialist will come up with a plan to stop the pain from the headaches. Dr. Fryer, the headache specialist, thinks that the shunt surgery might have caused Byron to have migraines. And these migraines are what is causing all of Byron's problems right now. The fatigue is seizure medicine related, but the headaches could be severe migraines.
Maybe if we get the headaches under control, Byron's sweet and bubbly personality could return!
Wow!!! What great good fortune, synchronicity, and more. The best of thr best at just the right moment
ReplyDeleteSo glad you 3 are getting the very best of care. So thanks-full. So grateful to NYU for making this possible for you.
ReplyDeleteEven on his worst days of pain, Byron is a true-blue CHAMP! A marathoner to the core.