Wednesday, September 30, 2009

Again?!

Earlier this month, Dr. Pidcock let us know that he recommends children repeat the Constraint Therapy Program every year if they can manage it.  A week later, the program coordinator Lisa Trotta asked me if I wanted to sign Byron up again for another round.  Kennedy Krieger has a very long waiting list, and she assured me that Byron would be given a place if we could let her know now.  At the time I could NOT imagine doing this again. Financially it has been challenging, but also it’s hard to be away from home for so long, and many other reasons.  Well today, Bob and I signed Byron up for fall 2011.  I know, call us crazy, but Byron has received so much from the program.   We also feel it will be great to give him this opportunity right before he starts Kindergarten. 

I also took a tour of the Ronald McDonald House in Baltimore today.  What a remarkable place! It would be available to us if we wanted to stay there in 2011.  It is like a fancy hotel built perfectly for families and children. There is a huge play area with every kind of toy for every age, including tiny kid size computers full of games.  There’s even a big TV with Wii.  The area is surrounded by glass so from the computer room, the exercise room, or the TV room you can watch the kids.  There’s a huge fenced in playground, every sleeping room has a private bath and flat screen TV with DVD.  Breakfast and Dinner is provided and there is a free fridge with other food.  Parking is also free and there is shuttle bus to Kennedy Krieger.  All this for $15 dollars a night.  Sign us up!


1 comment:

  1. Yeah!! I'm so happy you made this decision. Juliet

    ReplyDelete