5 Day Video EEG - Day One

Byron and I find ourselves back at Morgan Stanley Children's Hospital sooner than we expected.  Byron has had two surgeries at this hospital.  I sometimes call it Columbia Presbyterian but it really is Morgan Stanley Children's Hospital.

Byron's last EEG in October was not good news.  He is having subclinical spikes nearly every ten minutes while he is awake and almost continually at night.   While these are not seizures per se, they do not bode well for his development over time.  These spikes can interfere with learning and his overall good health.

The purpose of this visit is to see what this spiking really is i.e. whether indeed he is having small seizures that we are not noticing.  So he will be hooked up to the EEG machine and watched by video for five days.

So far today they have hooked him up, flashed a strobe light in his eyes for five full minutes (to try to induce a seizure in his Occipital Lobe (?)) and taken blood to test his seizure medicine levels.

AND still the guy is cheerful.  AND there ALOT of snacks which makes him very happy.

AND we have a single room with a million dollar view of the skyline and the Hudson river.