Thursday, December 15, 2016

Day Four - Eight Day Video EEG

I have retitled this series of posts "Eight Day Video EEG" because it looks like we will be here through Monday.  His doctor really wants to see a seizure.

Last night Byron was up until midnight and will be again tonight.  This is to stress his system.  And they have cut his Seizure medicine dose in half.  It's a bit frightening to have tried so hard to stop seizures for the last two years, only now to be trying to create one.  I am hoping we can get one or two soon so we can go home!

But today I found out they have free laundry here so it makes it easier to stay longer.

And another party!!! Today was the annual Christmas Gala.  They had real NYC Rockettes,  Stilt walkers and Build-a Bear, free toys, food and more!  I went down and got Byron a few things and then they also came up with more gifts.  Amazing experience.








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