After his SPECT test this morning we learned that this was likely the first of many tests that would be required before a decision could be made if surgery was an option.
This would mean Byron would stay in the hospital with an unknown outcome. The additional tests required are another SPECT test done off all medications (so he can start having seizures again), and an SEEG which is a very invasive test where they put electrodes directly on Byron's brain through the skull. Both of these tests have risks, the biggest risk is that once off seizure meds, we may lose the good control we have now. Seizures are finicky and if they get active again, they may be more difficult to control. And this is a HIGHLY undesirable risk at this time, now that he is stable.
Soooo... it seems the best option is to take Byron home on all these meds, and let him return to school and finish out his senior year. It may be hard for him, he will get tired more easily, but the school has been great and I am sure we can work something out.
We are all actually pretty relieved. Byron can completely heal from the shunt surgery he just had, before we add any more stressors to his system. And the seizures are controlled for now so this is a win.
It could be as early as tomorrow that the NYU satellite team; Bob, his mom and Byron come home to the frozen tundra :)
SGMKJ!!! Yay!!!!💕💕💕
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