This is a happy update. Byron has not had a seizure, either clinical or subclinical since yesterday noon. So now there are decisions to be made. Byron is on VERY high doses of three medications: 3grams Keppra, 200 mg Vimpat and Depakote. He is groggy and sleepy. Also the MRI showed exactly where the seizures are coming from which is good.
Now - do we let me go home on these medicines and finish out the school year and then look at surgery? Or do we push for the surgery now, hoping that this will end the seizures once and for all and he will have to deal with school once he recovers? Or is surgery off the table now and maybe that's a good thing?
The issue is that I don't know how much school work he can do on these meds. Maybe he will get used to them? He has been on Keppra and Vimpat before in 2022 and tolerated them pretty well (lower doses). He was awake and alert on these meds when he left the hospital then. So I'm not sure what is up. He also had a brain surgery just a few days ago to put the shunt in so maybe that's it? These are questions for the doctor that we need to remember to ask.
Bob comes down today with his mom Charlotte. Then I go back upstate for a few days.
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