Thursday, November 9, 2017

A Succesful Day

Byron was much more himself today and boy was he busy.  He was seen by a pediatrician, a neurologist, a physiatrist, had sessions with a speech therapist, occupational therapist and two sessions with a physical therapist.  He had blood drawn as well.  Yikes!! I'm exhausted just writing this and he had to do it all!

Bob came for a few hours which was very nice.  Byron also had a FaceTime call with his Nana.

We got the results back from the blood draw and everything looks good expect his iron.  He is anemic right now and still has a fever so they will add iron to his regimen.  He also is adjusting to the field cut in his eyes, which makes it challenging to see to the left but they told us he is doing well with it.  His neck is stiff and his head tilts a bit.  They think it is a combination of the vision loss and some unexpected neck weakness after the surgery.

Despite it ALL, Byron asked to go to the evening activities tonight so he is playing Wii Bowling with some other kids right now.  He is eating and drinking well, and he even sang a little bit for me this afternoon.

Starting tomorrow, Bob will take the weekend shift and I will get some much needed rest.  I will be back on Sunday afternoon. My brother Jeff will come to Blythedale on Saturday with some local food and good company.

4 comments:

  1. Hard to believe that it was one week ago tonight that we were ALL preparing for surgery! xo

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  2. So happy things are going so well. Enjoy your rest, Denise.

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  3. Wow Denise, quite a week. It's wonderful to see Byron so well and active. Rest well, I hope you can have a peaceful time in the room. Much love to you all.❤️πŸ‘‹πŸ¦‹πŸŒΉπŸŒ…

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