When you are ten years old, being in a New York City emergency room, arriving by ambulance no less, and staying up until 1:30 in the morning, life seems pretty ok.
They admitted us to a regular floor at 1:30 in the morning. By 2 am he finally fell asleep. Then of course they make rounds at 6 am and woke us all up! But we are in the right place.
They have Byron on IV antibiotics and the neurosurgeon who was making rounds this morning said it looked like the lump behind his ear is getting smaller. Byron has MUCH better energy than last night as well. Last night he was totally wired. That could be the steroid wean or the stress of moving here, nobody is really sure. His pupils were extremely dilated as well.
But here he is this morning, sweet and loving, eating his bagel and cream cheese and smiling. We should know more about what it next later this morning. YAWN 😝
Coming off steroids, especially Decadron is not easy. I had to do it when I went blind. It makes for one cranky and highly agitated, anxious state. I’m glad he’s feeling better. Also coming off steroids would be the time when you would see some type of infection. Steroids are known for their ability to mask symptoms. It’s great that he is responding to the antibiotics. Let’s hope that they can just kick that bacteria right out of there. Sending tons of love and prayers ❤️
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