First Day of School and more

The day started out a little wobbly.  Last night Byron went to bed at 8:00 pm and was up again at 9:40 pm, 11am and 2am.  No real idea why and it did not look like there was any "seizure" type activity associated with the waking.  The doctor thinks it could be the steroids he is on causing the fitful sleeping.  His last steroid dose is on the 20th so that will be nice.

But because he didn't sleep well he was very cranky early in the day.  He napped at 10:30 am for about 45 minutes and that seemed to do the trick.  He has been chipper and happy the rest of the day so far.

Today he had one hour of private school instruction, and then he asked to go off to the school building.  They picked him up at 1:00 pm and he was there for an hour.  He really liked it.  He mentioned that his favorite things were the hamster and that they play a video game he likes called Roblox.

At 2 pm he was whisked off to speech and physical therapy.

Everyone thinks he is doing really well.  They keep asking me(?) when I think we are going home.  Today I said that I thought it could be two weeks from today - November 27th - but they told me that they are really not sure he needs to be here that long.  His physical functioning is almost where it was before the surgery, and we can get  physical therapy as needed at the Center for Discovery in Hurleyville.  But, in my opinion,  Byron needs to be medically stable before I would agree to take him home.  That would mean no more fevers or swelling.

They are going to have a team meeting about Byron's case tomorrow so we will see.  It would be really nice to be home for Thanksgiving I have to say.

Byron's recovery truly is miraculous.  I never imagined it would be this easy (knocking on wood superstitiously).  It is the boundless Grace and Blessings that carry us along. 💖💖