Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.
Monday, November 27, 2017
Byron had no fever for most of the day today. This is great news. I spoke to the surgeon who said we can just watch and see or start Byron on a low dose of steroids. Apparently the fevers are caused by inflammation. The inflammation will go down in time or can be sped along by the steroids. It looks like today was a good turning point so we will wait on the steroids. Other than that Byron remains in great spirits. He even made a new singing video ;)