Sunday, November 19, 2017

This "Awkward" (Byron's word) Weekend Adventure

Precaution is an important word in medicine.  "We are doing this as a precaution" is a term I have heard frequently on this journey.  Emergencies are truly rare.  I am beginning to understand that this entire weekend side trip away from Blythedale was not necessary but a precaution.    And while I totally agree with and understand precautionary measures, they keep us all safe in most instances, I will remember this weekend as a bit annoying if it was all not necessary.

It turns out the bacteria they found in Byron's blood, which had them very worried yesterday, was from bacteria that was on his skin when they took blood in the ER.  He did not have a fever when we arrived in the ER (and still doesn't) , so he was already doing much better in that regard  The doctors here have told us every day the the increase in white blood cell count is due to Bryon being on steroids.  And, I posted a picture of Byron's enlarged glad yesterday on the Hemispheretcomy Facebook Page (yes there is one - there are two actually) and one mother said that after her daughter's surgery, she had an enlarged gland for a year.  So, enlarged gland, bacteria in blood, increased white blood cell count, MAY turn out that to be a big nothingburger.   Which will be awesome and 😖 at the same time. 

Byron is doing SO well, everyone here and at Blythedale has said that.  Last night the doctor told me "Byron looks amazing, so just based on how he is presenting, there is not really too much that can be wrong with him".

If we keep on this positive trajectory, we should be back at Blythedale on Monday and home soon!

Here are a few words from Byron:










6 comments:

  1. Wow, so much going on!!! Byron looks great and seems happy!!! Glad to hear all is going well!!!! Much love, Shreya

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  2. Omg this was like music to my heart to hear from him after all his battles. He reminds me of Arjuna on the battlefield with all his battles and choosing dharma was often the more challenging painful path. What s beautiful warrior a tribute to amazing parents. Sending blessings and prayers for healthy body and home and rest for all, thank you for including us God bless you all!! ONS

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  3. Byron! Great to see you and hear you! Keep up the awesome healing and you’ll be home in no time!

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  4. I loooove this video of adorable Byron. So glad he is doing better and I am praying for some rest for you. Sending you tons of love and prayers. Have a good night 🌙❤️

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  5. Love seeing his smile! Fingers crossed that you all get to go home soon <3

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  6. Wow Byron looks and sounds so amazing thank you for sharing the videos we love you all. I hope you get to come home this week. I bet Byron will be successful in convincing the docs and he’s ready to go home.

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