Byron had his first full day with no fever to speak of. He went to 99.1 later in the day which is not bad, so I really hope we are getting on the other side of the fevers.
Byron started Physical Therapy and Occupational Therapy today at the Center for Discovery. He will have 4 weeks of therapy there: 2 sessions of PT per week and 1 session of OT per week. The Occupational Therapist said that she has worked with several children after Hemispherectomy and, like many others, said she could not believe how well Byron is doing.
Byron appears to be a bit looser in his hip and leg though, which is causing his toe to turn in rather dramatically. They will work on this of course, but we are not happy about that. They also said that he has lost most of the gross assistive function of his left arm, but they feel confident that they can restore that with OT. On Tuesday he will be fitted, also at the Center for Discovery, for new braces and splints - a night leg brace and hand splint, and a day leg brace and hand splint.
The plan still is not to return to school until after the January break, and even then to only go for half day. The focus for this time, and even once school starts, will be therapy
All in all, a good day!
Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.