Byron Pratt, age 11, has Cerebral Palsy (Right Hemiplegia) caused by a stroke before birth. In 2015 he developed seizures and a rare form of Epilepsy called ESES, neither of which responded to treatment with medications. On November 3, 2017 he had a Functional Hemispherectomy. He has had many other major procedures in his short life including surgery for exotropia in both eyes, tonsils and adenoids removal, Selective Dorsal Rhizotomy (SDR), Constraint Therapy, and heel cord lengthening. The recent posts are about the Hemispherectomy and what follows. Older posts about other procedures can be found earlier in the blog or by links in the sidebar.
Sunday, November 26, 2017
Temperature Regulator Error?
After a weekend of wildly fluctuating temperatures with no apparent end in sight, I'm wondering if Byron's system is having trouble regulating his internal temperature. He does not appear sick, is as happy as ever and full of energy. But the right lymph node is huge and hard, there is a slight ridge near the lower part of his incision and his temperature is all over the map - from normal to 101 to 99.3. Tylenol seems to reduce it a bit but not enough. I will call the surgeon on Monday just to check in. But I wonder if this is a temporary normal?